Still raining!

Well it's still raining! Is this global warming then? I notice they seem to have stopped calling it that and now say 'climate change' instead. Ok so we get a lot of rain in Cornwall, especially in the north here, but this is getting silly now.

I'm going to try and post some photos over the next few days. I always think it's nice if you can see who it is your reading about. Not that I allow photos of myself to see the light of day very often. I'm one of those people who dosen't photograph well. But Jamie (our little boy) is angelic in photos.

People say it must be hard having a special needs child. To be honest I have nothing to compare it with so to me it's the norm. Jamie is an only child and so all his little odd ways are just the way it is. But I do wish he would talk. Of everything I think that's the thing that bothers me most. I long for the day when he says mummy. They tell us not to expect proper speech until he's seven or eight. I know it will come, there is no reason to think otherwise. He has speech theropey and they tell us that he has the ability, makes all the right sounds for speech. So it's a waiting game.

So what is Sotos syndrome? Well I wish someone would tell me! It's quite a rare condition that currently affects about 300 children in this country. It's a groth and development problem. Basically Jamie is about two years behind with almost everything, about three years behind with his speech. But he's ahead with groth, especially his head, as you'll see if I can manage to post a photo. And he's ahead with some things like memory and recognition, we're pretty sure he can read.

If there's anyone out there with any experience of Sotos I would love to hear from you.